BRCA CAN’T CRACK YA

Why I’m Writing This- Alex

I got the call in the hallway in the middle of the work day.

I already knew what she was going to say. I think I’d known for a while, honestly. My aunt had died the year before from breast cancer. It was aggressive and it was fast and she was young, and her death is the reason any of us got tested in the first place. We tested my dad first. He came back positive for BRCA1. So then it was our turn, me and my three younger siblings, to find out if we’d inherited it too.

I knew I had. I just knew.

At the time I was working in clinical research, already on my way toward medical school. So a result like BRCA1 positive wasn’t abstract to me. I knew exactly what it meant before the genetic counselor finished her sentence. The risk percentages. The options. What comes next. I’d spent years working around this kind of information and suddenly it was about me, in a hallway, on a Tuesday afternoon.

It still knocked the wind out of me. That’s the part I wasn’t prepared for. Knowing something is coming doesn’t actually soften the landing. And knowing the clinical reality of what you’re facing doesn’t make you any less of a person sitting alone in a hallway trying to hold it together.

The genetic counselor didn’t just tell me I was positive. She told me my sisters were too. All of that, delivered in a hallway, in the middle of a work day, while my coworkers moved around me like it was any other Tuesday.

I said thank you, hung up, and walked back into the lab.

Nobody noticed anything. I just picked up where I left off, handling samples, doing the job, keeping it together. But I was carrying all of it at once. My result. My sisters’ results. The thought of having to talk to them later. The memory of my aunt. All of it, just sitting there in my chest while I worked.

That’s the thing about BRCA1 that doesn’t get talked about enough. It doesn’t just land on you. It moves through your whole family. It shows up in the people you love. You’re grieving your aunt and worrying about your sisters and processing your own news all at the same time, and somehow you’re also just supposed to go finish your shift.

I’m in medical school now. And I can tell you that going through this changed how I think about the patients I’m going to take care of one day. I thought I understood what it meant to receive a difficult diagnosis. I didn’t. Not really. Not until I was the one standing in the hallway. There is a version of me that will walk into every difficult conversation with a patient carrying that hallway with me, and I think that’s probably a good thing.

I started this blog because I couldn’t find what I needed when I was going through it. There’s plenty of clinical information out there, believe me, I read all of it. What’s harder to find is someone being straight with you about what the experience actually feels like. The fear. The weird autopilot that kicks in. The way it changes how you see yourself and the people around you.

So that’s what I’m going to write about. The mastectomy, the reconstruction, the recovery, all of it. The good days and the really hard ones. I’m not going to dress it up.

Nothing here is medical advice. I’m just someone who went through it and came out the other side with a lot to say.

If you’re in the middle of it right now, I hope something here helps.

I just had samples to get back to.

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